August 9: I'm almost up
to 200 letters!
August 7: Hey! I've got
some bad news, I have leukemia again. I have to go to the hospital on
Tuesday to start the treatment, so I won't be updating my website very
often. But just because I'm not at home, doesn't mean you guys can start
slacking! Keep sending me letters, because I'm still going to be working
on getting more funding! Well, talk to you guys later..
August 2: Hey everyone!
I probably won't be writing for a couple days, because I have to go to
the hospital. For the past couple weeks I haven't been feeling too well.
So, last Tuesday I got a CAT scan and it showed that my intestine was
swollen. And because the doctors aren't sure why my intestine is swollen
I have to get a biopsy. So, I'll talk to you guys later! :)
July 30: Hey guess what!
Yesterday, I went horseback riding! It's was so much fun! Anyways, I
just got 4 more letters, and 3 of them are in Japanese! Cool huh? Oh and
you guys have to check out this really funny link:
July 29: Hey everyone! I
just wanted to say thanks to Alyssa Goldman for collecting 47 letters!!
She organized an activity that was all about Peaceisthecure.org and
encouraged the people in her camp to write letters. Thanks a lot Alyssa!
It's 12:11am, I
started scanning the 47 letters in at about 10:15pm and I'm only a
little more then halfway done! And after I'm done scanning all the
letters in I have to put them on my website, but right now it' time for
a break....be back later
Well it's 1:06am and I'm
finally done scanning all the letters...well except for one 'cause I
can't read the name! Haha! So, I'll try and put that letter on later,
but right now I'm going to put the letters I just scanned on my
Well now it's 2:14am and I
am finally done putting the letters on the website, and the grand total
July 28: Hey guys! I just
got the package of 47 letters!! I'm going to be up all night scanning
them in! Well, I better get to work. Talk to you guys later....
July 26: Hey everyone,
sorry I haven't written in awhile my Mom, Dad, and I have been in
Jackson Hole, Wyoming visiting some friends. It was pretty fun. We went
on a scenic float trip down the Snake River, and saw a moose, a bunch of
buffalo, a beaver, and some deer. Anyways, Shauna's (Umber's friend in
Texas) sister, Alyssa went to a camp and she made everyone write a letter, so
they just sent me 48 letters in the mail, I should probably get them in
a couple days!!!!
July 20: Hey guys! I'm
feeling a lot better today. And I got 3 more letters!
July 16: Hey everyone!
I'm kind of bummed today. I was going to go to Denver with my friend
Jill tomorrow to celebrate her birthday but I can't go because I've been
feeling pretty bad ever since I got the chemo in my spine and it
probably wouldn't be a good idea. So, that kind of sucks, but I got 3
more letters today so that's cool. I'll probably put them on the website
tomorrow because I don't have a USB cable to hook up to my scanner right
now. Talk to you guys later!
July 15: Hey guys. I'm
not feeling so good today. Yesterday I had to go to the hospital for a
check up and also to get chemo in my spine. Who ever heard of medicine
making you feel sick? Chemo is so weird. Anyways, talk to you
July 11: Hey
everyone! So, my brother has a friend in Texas named Shauna, which is
one of the reasons he went on a road trip to Mexico so he could visit
her and her family. They have been helping me a lot with my cause, which
is why I have a bunch of letters from Texas. So, Shauna's family told
many people about my cause including the president of Temple Mount Sinai, Phil
Rothstein, and he made a donation to The Leukemia & Lymphoma Society in
honor of me! Check out the card The Leukemia & Lymphoma Society sent me
July 7: I'm up to 108
A lot of the letters are
from India, and my brother and I were talking and he said that because
they aren't U.S. citizens they can't ask the Pres. to do something, so
their letters don't count. So, I said they do count because they are
world citizens and the President's decision affects the whole world. And
then he agreed with me. What do you guys think?
July 3: Hey guys! Not
much going on, I got a 3 page letter from someone! Pretty cool huh? Well
tomorrow's the 4th of July, I might go to Jackson Hole, Wyoming for a
couple days with my family, but we're not sure yet. Well, have a good
4th, set off a bunch of fireworks!
June 29: Wow, I can't
believe I have 84 letters! Thanks everyone!
June 27: Hey, I saw
Fahrenheit 9/11 yesterday. It's an awesome movie! Michael Moore
presents the facts perfectly. I'd recommend Fahrenheit 9/11 to anyone!
June 25: Guess what!!!!
I'm on the front page of the Coloradoan!!!! check it out:
We didn't even know that it
was out, one of my brother's friends called us to tell us that it was on
the front page! I can't believe it's on the front page, that means I'M
front page news!!!! Thanks for all you're help everyone!
Today has been so cool! So, at
about 1:45pm a cameraman called me from Channel 4 News and asked me if
he could interview me because he saw the Coloradoan article. I said,
"Sure, when?" And he said, "I was thinking right now, because we want to
put it on tonight's news." I didn't know what to say because nobody was
home and I wasn't sure if I should say yes, so I asked if I could call
him back. And he said that it was ok. So, I called my mom a bunch of
times and she didn't pick up her cell phone, then I called
Miramont Sports Center (the place she was working-out at) and paged her
but she didn't hear it. So, I called my brother (he's on a road-trip to
Mexico right now) to ask him what I should do, but he didn't pick up his
cell phone. So, I called the cameraman back and said yes and that he
could come right now, and he asked me if my parents said it was ok, so I
said yes even though I hadn't talked to them yet. He said he would be at
my house in 15 minutes! So, I called my dad at his lab, and made sure it
was ok with him. Then about 10 minutes later the cameraman and my mom
came, and we did the interview. So, I was Channel 4 News today at
June 24: Hey everyone!
The interview went really well. He asked me a lot about the letter
President Bush sent me. And I think that it's going to run sometime next
week! It'll be really cool when that article runs, and when the article
the Gannett News Service reporter is doing runs because so many people
will read them, and get interested. So, I'm just waiting for those
articles to run. Well, talk to you guys later....
June 22: Hey guys, not
much goin on today. I just got a couple more letters. Oh I forgot! And
I'm going to be interviewed by the Coloradoan on Thursday, as a follow
up to the article they did on me in May, so that should be pretty cool.
Anyways tomorrow I'm going
to the hospital for yet another check-up. The docs are starting me on
this medicine that's supposed to prevent Leukemia, which is cool but the
only problem is that it's in the form of a shot! So, I'll have to be on
it for 3 months and then off of it for three months. I think my doctor
may be crazy...just kidding. ;) Well talk to you later!
June 21: Hey everyone!
Check out this email I got today:
My name is Sumit Mehrotra and i am a friend of Sameer (your cousin in
India). He told me about your illness and the courage, grit and
of yours in fighting the disease. It provoked me to write this mail to
to show mercy but to let you know that how the action of yours is
motivating people like me to take challenges in life- HEAD ON.
I salute your indomitable spirit and noble soul. The best way to do is
to promise you that i will always follow the path of peace in a true
sense and shall endeavor towards ensuring and promoting peace throughout
the world in any small manner i can.
Thanks a lot for taking the lead in such a noble cause and lifting our
spirits to work towards a brighter tommorrow.
May God Bless you and entire mankind,
Sumit (a friend of yours)
June 20: Happy Father's
So, I just thought that I
should probably tell you guys a little about me. Well I guess I'll start
with the not so good parts first. Okay, well I've had cancer on and off
since I was 3 years old. The first time I had a tumor in my spine called
"meningeal sarcoma with rhabdoid features." Don't ask me what it means
all I know is that it was extremely rare. Then as a result of one of the
chemotherapy drugs, I was diagnosed with Acute Myeloid Leukemia (AML).
After I received a bone marrow transplant from my brother in a Texas
children's hospital we thought it was over. But then about 6 months
later I had a relapse, because the doctors didn't do the procedure
right. So, we moved to Colorado, for my dad's job and so I could be
treated at The Children's Hospital in Denver. I received another bone
marrow transplant from my brother (thanks Umber!). After that I was
cancer free for 6 years! Then in March the docs told me I had relapsed
again. So they tried something new they gave me a stem cell transplant,
from my brother (thanks again!).
But anyways the point of me
telling you all this is that I had a specific type of Leukemia called "monosomy
7". It's where chromosome 7 is partially or totally missing. This type
is pretty rare, and because it's so rare hardly any doctors do research
on it. Why? Because they don't have enough funding! So come on guys tell
your friends and family about my website, and write some letters! We
need more funding! Thanks!
June 18: Hey guys! I
just wrote an article for a health newsletter called The Halcyon
Connection, and it got approved! So, the article is going to be
published in July! Check it out:
I just got 2 more letters, and it's only 9:41am!!
The transfusion went well...even though it took way too long.
You can check out Bush's
letter now, even though there's not that much there ;)
I received 7 more letters
today and it's only 1:30pm!
I was just getting ready to leave for the hospital when the door bell
rang, guess what it was....a FedEx from the White House! So, I finally
got Bush's response, I'll put it on the website when I get back.....
Hey everyone! I just decided
to start this blog to keep you guys updated. Today I received my 30th
letter, and keep them coming!
Tomorrow I have to go to
Children's Hospital and get a stem cell transfusion from my brother.
It's supposed to prevent the leukemia from coming back, but hopefully I
can get some letters from the hospital! Talk to you guys tomorrow.....